|
|
What is ectodermal
dysplasia?
- Ectodermal
dysplasia is a disorder involving two or more of the ectodermal
structures, which include the skin, hair, nails, teeth, mucus
and sweat glands.
- Each person
with ectodermal dysplasia may have a different combination of
defects. One may have hair and nails affected, while another may
have involvement of sweat glands and teeth. Each combination is
considered a distinct type of ectodermal dysplasia.
How is ectodermal
dysplasia treated?
- Because there
are so many presentations of this disorder, several times a year
a special ectodermal dysplasia clinic is arranged at the Center
for Craniofacial Anomalies at UCSF. This clinic includes our regular
team of specialists plus a dermatologist and a prosthodontist.
- The special
needs of the patient are taken into consideration as a treatment
plan is developed which may include recommendations for dentures
or implants, special treatment for hair, nails and skin, or recommendations
for lifestyle adjustments to maximize comfort and health.
- A child with
ectodermal dysplasia may encounter social and emotional challenges
unique to this condition. Support organizations and resources
are available for children and their families (see Support
Information, noting particularly the National
Foundation for Ectodermal Dysplasias).
|
|
