| About
Face |
888-486-1209 |
|
| A
support and information network concerned with facial differences.
|
|
| American
Cleft Palate-Craniofacial Association |
800-24-CLEFT |
www.cleftline.org |
| 24
hour parent information and support line.
|
|
| Apert
Support & Information Network |
916-961-1092 |
|
| A
parent run support network for families affected by Apert
syndrome. |
|
| California
Children's Services |
415-554-9952
(SF) |
|
| Medical
insurance for middle and low-income children with craniofacial
anomalies and other chronic conditions. (Available
in all California counties.) |
|
| Changing
Faces |
|
www.changingfaces.co.uk |
| "Concerned
with the social and emotional consequences of facial disfigurement."
|
|
| Children's
Hopes & Dreams |
973-361-7366 |
www.childrenswishes.org |
| Pen-pal
program for children with disabilities. |
|
| Children's
Craniofacial Association |
800-535-3643 |
www.ccakids.com |
|
| Cleft
Advocate |
|
www.cleftadvocate.org |
| A
family led support organization for individuals affected
by cleft lip and palate.
|
|
| Coalition
of California Cleft and Craniofacial Teams |
www.cleftteam.org |
| A
coalition of craniofacial teams throughout California working
together to positively affect change to laws and regulations
affecting patients with craniofacial conditions.
|
|
| Dubowitz
Syndrome |
|
www.dubowitz.org |
| Information
and parent support for individual affected by Dubowitz syndrome.
|
|
| FACES
- National Craniofacial Association |
800-332-2373 |
www.faces-cranio.org |
| "Serving
children and adults with severe craniofacial deformities."
|
|
| F.A.C.E.S.
- Families & Child Emotional Support |
209-521-5211 |
|
| Parent
led support for families of a child born with a cleft.
|
|
| Foundation
for Nager and Miller Syndromes |
800-507-3667 |
www.nagerormillersynd.com/new |
| A
parent-run support and information organization dedicated
to helping those affected by Nager and Miller Syndromes. |
|
| Let's
Face It |
360-676-7325 |
www.faceit.org |
| Publishers
of a comprehensive guide to support and information on craniofacial
anomalies. |
|
| National
Foundation for Ectodermal Dysplasias |
618-566-4718 |
www.nfed.org |
|
| Parents
Helping Parents |
408-727-5775 |
www.php.com |
| "A
parent-directed family resource center serving children
with special needs and their families."
|
|
| Pierre
Robin Network |
|
www.pierrerobin.org |
| A
parent developed website for families affected by Pierre
Robin sequence. |
|
| Regional
Centers |
415-546-9222 |
|
| Early
intervention and ongoing support and services for children
with or at risk for delay. (All counties)
|
|
| Stickler
Involved People |
|
www.sticklers.org |
| Information
and support for individuals affected by Stickler Syndrome.
|
|
| Sturge-Weber
Foundation |
800-627-5482 |
www.sturge-weber.com |
| Information
and support for individuals affected by Sturge-Weber.
|
|
| Support
for Families of Children with Disabilities |
415-282-7494 |
www.supportforfamilies.org |
| Offers
a wide range of support groups, parent-mentor program, workshops,
IEP assistance, and advocacy. |
|
| Teeters
Page |
|
www.apert.org |
| A
family support webpage for families and individuals affected
by Apert syndrome. |
|
| Treacher
Collins Connection |
|
www.tcconnection.org |
| A
family led support organization for people with Treacher Collins
and their families. |
|
| VCFS
Educational Foundation |
315-464-6590 |
www.vcfsef.org |
| Providing
support and information regarding Velocardiofacial Syndrome.
|
|
| Wide
Smiles |
209-942-2812 |
www.widesmiles.org |
| Cleft
lip and palate resource. |
|
| Woodbine
House |
800-843-7323 |
www.woodbinehouse.com |
| Publishes
50 books on disabilities including craniofacial anomalies.
|
